So this showed up at my front door today

buphenyl

Thanks to the wonderful people at Hyperion Therapeutics and to the helpful advice of Mindy Mooney, Jacob is now equipped with enough medication for approximately 555 days, at no cost to us.

I am now thinking that part of the trouble we had was that our prescription originally called for an oral suspension rather than a powder, which had to be specially prepared at the compounding pharmacy. However, the powdered version can easily be mixed in water and pushed through his g-tube the same way. So bring on the gram scale, because we are in business!

So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ (or ‘How shall we afford Jacob’s medication?’) 
For … your heavenly Father knows that you need them.
-Matthews 6:31-32, with my addition in parentheses

2 thoughts on “So this showed up at my front door today

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s