Did you know that 30 million people in America are currently living with a rare disease? Many of them and their parents, like myself, blog about their experiences. I will occasionally share some of their stories here.
Elsie is a beautiful little girl living with the rare disease cystinosis. You can read about her on her mother’s blog. And if you are ever looking for a wonderful organization to support people like Jacob and Elsie, please consider donating to NORD, the National Organization for Rare Disorders.