Today’s Rare Highlight post comes from Anne, the mom of a little boy with the rare disease Atypical HUS. Atypical HUS is an extremely rare genetic disorder that often causes kidney failure, among other complications. Like so many parents of rare children, this mom is handling her son’s medical journey with such grace.
Anne describes the feeling of sitting and waiting so beautifully. If you know me at all, you know that sitting is not my strength. Waiting even less so. Part of being a parent, though, rare or otherwise, is to learn to do difficult things for our babies.
Read her post here: http://sassyhaven.blogspot.com/2015/09/learning-to-sit.html